Tag Archives: brain surgery

Wearing Broken Shackles

In 11 days, I will plant a stone marking 20 years since I last rolled under the blinding white lights and into the chilled, antiseptic air of an operating room. Two decades without a daily reminder of what’s always waiting in the shadows, ready to strike. 240 months spent tetherless and free. 7,300 mornings not wondering if I’d end the day how I started it.

Sometimes it gets harder to remember…really remember. I suppose I should be thankful for that visceral absence, but the persistent big-picture long-term impact of wirewalking above a sea of hungry sharks never sits far from the surface, and the shrapnel left in the wake of a detonation is almost impossible to completely clean.

Still, I wander through middle age as curious and confused as ever, albeit without the nasty neurosurgical albatross adding even more unmanageable weight to an already struggling neck.

The monster may not be lurking in plain sight, but he’s always under the bed, plotting and planning.

Real repair has proven to be an elusive, moving target. An endeavor filled with far more hope than tangible solutions. One step forward, a thousand steps back.

An unambiguous, inconvenient conundrum stubbornly stands in my path as a wedge to sustained emotional health. How do you rewire all the fried circuitry without losing the solid soldering?

This has always been the question…and the problem. 

I am beyond grateful for the privilege of no longer spending countless nights cursing my station and desperately sprinting down blackened tunnels in search of a distant glimmer.

But with that freed hard drive space comes a bevy of compulsions, neuroses, and the itchy sensation that there’s never a big enough broom to gather the broken shards. Still, I sweep…and sweep…and sweep.

Twenty years is a long time. But those falling calendar pages have also accompanied far too many internal deep dives into the dark. 

I’m immensely proud of the courage (and maybe recklessness) it took to roll the dice on a procedure that had the potential to stop all others, even when the prior swing at the same pitch resulted in a mega miss. I was ready to risk losing all my chips at the table if it meant I could have my life back.

My surgeons, nurses, therapists, and support circles were beyond belief. So many pieces had to fall perfectly into place, and that took a tremendous amount of planning, strategy, and preparation. It’s still surreal to think about the number of spinning plates sitting at the top of some very lofty sticks.

Modern medical miracles of science met human aptitude and artistry. 

Regardless of all the rough edges still in desperate need of smoothing, it was a feat of unimaginable skill, capability, and compassion. 

I was a lost soul without any hope of being found. At least I now have the time and opportunity to continue the search.

Adolescence Interrupted

My World Never Feels Safe…And Now I’m Right

The roads are all lined with eggshells. Tiptoes and feather steps, thinking back to a time when sidewalk cracks were the only items on a list of things to avoid.

Leaving a house full of physical walls to venture outside into a world of imaginary ones is a nasty little mind trick to navigate.

For many years I have maintained some semblance of sanity by following a specific series of patterns, habits, and concocted restrictive rules to live among the “normals,” and do my best to blend. Now, everyone else has systems, and there’s just too much competing static to cut clean s-curves without a face full of powder.

Monkey bar-swinging from one brain surgery to the next has saddled this lanky lad with a backpack full of trauma, and it’s a daily challenge to keep those shoulders back. But when that carefully calibrated balance is disrupted, and uncontrollable variables are added to the recipe, the already-crispy cookies in the oven tend to emerge blackened and burned.

If the personal side effects of this historic snapshot are nothing more than increased worry, discomfort, and agitation, I will consider myself incredibly lucky. Countless victims of this global tidal wave would gladly trade everything for a little increased anxiety.

Nervousness is temporary. Asphyxiation is not.

This is Chapter One. We are wading into dangerous waters, and we’re not even waist-deep. Stay vigilant. Stay clean. Stay supported.

Stay safe.

Adolescence Interrupted

Do Not Pass Go

stop1“Our goals can only be reached through a vehicle of a plan, in which we must fervently believe, and upon which we must vigorously act. There is no other route to success.”  —Pablo Picasso

Well, I have found a familiar friend in the rubble of my recent implosion. That sidekick is resilience.

I have been challenged, stomped on, and set off course more times in this life than I can begin to count. But there is one constant, and that is my bionic ability to rebound and strategize. With eyes wide, I find a way to see beyond the flames to find some piece of solace and security on the other side.

Being a hopeful thinker is certainly helpful, but something starts in the gut and propels me past the chaos of the sandstorm and into placid pastures. I am more than grateful for this gift, and I can thank the ruthless brain surgeries for building my armor. Drilling a sense of possibility and perspective into a head that would rather obey instincts by cowering in the corner, adversity has ultimately become an asset.

Now, I can’t for a second say that I relish the consistent destruction of my plans, but I can take pride in the way those broken pieces are observed, analyzed, gathered, and disposed of in an almost-mechanical manner. I waste no time on tears when the next chapter is waiting to be written.

Flexibility and perseverance have become fine bedfellows, and I eagerly anticipate the day those red lights finally flash green.

Adolescence Interrupted